Your Voices are now being Heard!
Some great news – in October 2013 the HPSC mentioned that a Taskforce was being set up for early 2014 (later confirmed by Minister for Health & Children, Dr James Reilly). A tick-borne infection sub committee created a Lyme disease leaflet & poster in 2010 – let’s hope that the new committee next year will bring these leaflets out to the public & posters in national parks to warn the public of the dangers before it is too late!
More good news is that a hearing was held on 21st November at the government buildings (committee room 2) in Dublin city, Ireland – an introduction is below along with links to the transcripts 🙂
Ireland’s very first Lyme Disease Conference was held in Dublin on 5/6 June 2012. At this event filming took place for an upcoming documentary by Lisa Vandegrift Davala & her team. On the 7th June, Lisa, via Senator MacSharry, was invited to speak to elected representatives at the Irish government offices, regarding testing & diagnosis, accompanied by Dr Shah from Igenex labs in America. Senator Moloney who met with Lisa & Tick Talk representatives at the conference, also added her support.
In 2013, following concerns over poor diagnosis & treatment in Ireland, Lyme patients Tracy Brennan & Annette Moloney met with TD’s (Irish politicians) Derek Nolan, Emmett Stagg plus Ciara Conway & Jerry Butimer of the Oireachtas Health Committee.
November 21st 2013 therefore marked a momentous day whereby Lisa, Tracy & Annette were invited to present their concerns & personal stories to the committee. Tracy & Annette were able to interview over 100 patients before the day & prepared slides of some of these cases –they involved reports from children suffering with Lyme which is heart wrenching to read, the health committee received copies of these presentations before the hearing took place.
Also invited was lab specialist Armin Schwarzbach, tick researcher Dr Eoin Healy, & head of regional vet labs Mícheál Casey. Below are some summaries of their presentations….[Please note that Tick Talk was not instrumental in pulling this hearing together, full credit goes to the patients & speakers involved!]
Links to summary, full transcript & video playback…
For Tick Talk’s summary of the event head on down to: https://ticktalkireland.files.wordpress.com/2013/12/committee-for-health-write-up.doc
A copy of the full transcript is available at: http://oireachtasdebates.oireachtas.ie/Debates%20Authoring/DebatesWebPack.nsf/committeetakes/HEJ2013112100001?opendocument
The full hearing (90 minutes) can be played back at: http://www.oireachtas.ie/viewdoc.asp?DocID=24859&&CatID=127
NEWLY ADDED 14th Dec 2013
Videos of the hearing has now also been released on Vimeo which allows for segments to be played back also (see below)..
Nolan TD was thanked for bringing it to committee’s attention & Lyme Disease may be re-visited again next year.
To see a newspaper write up check out: Irish Independent 22 Nov 2013
For a radio interview by Tick Talk member Ann Maher who was in the public gallery: KCLR 96 FM 22 Nov 2013 (Sue Nunn show)
NEWLY ADDED 14TH DEC 2013
Plus latest news article ‘I was so tired and had this feeling that I’d just collapse’
Soon to follow – Tick Talk’s end of year round up plus our final accounts should be available at the end of 2013. Meanwhile we do hope you have a happy, safe Christmas & a joyous/prosperous New Year!