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Archive for the ‘If Ticks Could Talk’ Category

Good news!

Luna has arrived on Kindle! The children’s book ‘Adventures of Luna & Dips‘ written by Jenny O’Dea of Tick Talk Ireland is now released on kindle & available worldwide.

Written as an educational & fun book on the life cycle of ticks, where they live & how they feed – tips on prevention are included, with a mix of facts, fiction & illustrations. Suited to ages 10 & up.To get your copy can search by ttile or product code B00VS46RIQ in any amazon store around the world.

luna front cover

Dates for your diary this Spring – on April 21st there will be an informal patient meeting at Leinster House Dublin from 2-4 pm to discuss issues surrounding testing & treatment – please encourage your local TD to attend if you can.

The HPSC’s Scientific Advisory Lyme Borreliosis Sub-Committee will be meeting on 6th May 2015 & on 17th May there will be a Lyme patient & carer meetup in Thurles, Tipperary (if you’d like more details feel free to use our contact us page for more info).

This year, the HSE announced their Lyme Awareness week will run from April 27th to May 1st 2015.

The HPSC (health protection & surveillance centre) have recently published information on the EPI Insights web page at:
http://ndsc.newsweaver.ie/epiinsight/1d8k33gt9m010gkzp9yxn5?a=1&p=48604010&t=17517774

Leaflets: Tick Talk Ireland have available some leaflets for distribution in Ireland, if you would like to help pass leaflets to vets, GPs, local libraries, churches, schools & sport clubs, brownie, scouts etc feel free to contact us (as soon as possible) at: http://www.ticktalkireland.org/contact.php

Portumna larval 2

Leaflets are also available for download on our site at: http://www.ticktalkireland.org/leaflets.html

Surveys: Spring is with us & sadly so are the ticks!  Keep a close eye on your self, children & pets whilst out playing, camping, fishing or even releaxing in your own back garden (our surveys show that 22% of ticks being reported were found in their own gardens). If you do spot a tick feel free to let us know on our surveys (see Tick Talking While You’re Walking link on the following site): http://www.ticktalkireland.org/surveys.html

The link above has survey results up to May 2014 with latest results being published summer 2015.

If you are a Lyme patient residing in Ireland (or a patient abroad who was infected in Ireland) why not take our Lyme Disease in Ireland survey located in the web site posted above too. Meanwhile, we have a new map online which will help us pinpoint cases (please note this indicates where the tick bite/infection took place not where the patient resides..)

https://www.zeemaps.com/map?group=1392964&hc_location=ufi

What about latest research? Promising new studies are coming out about persisters causing ongoing symptoms & the drugs that can be helpful to tackle them – let’s hope this type of science can continue unhindered as patients are tired of the ongoing debate about chronic Lyme & just want to be treated!

Drug Combinations against Borrelia burgdorferi Persisters In Vitro: Eradication Achieved by Using Daptomycin, Cefoperazone and Doxycycline

Jie Feng, Paul G. Auwaerter, Ying Zhang
http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0117207

 Published: March 25, 2015 / DOI: 10.1371/journal.pone.0117207

Taking a Bite out of Lyme: in honour of Lyme patients around the world & in support of the Lyme Disease Challenge here is Tick Talk Ireland’s submission:

Shot of lime 2

For information on transmission head on down to:
https://ticktalkireland.wordpress.com/facebook-contents-page/transmission/

IDSA: The outdated IDSA guidelines are currently under review- the deadline for submissions/comments on their proposed Lyme Project Plan has been extended to April 24th 2015, more info at: http://lymedisease.org/news/lymepolicywonk/idsa-deadline-extended.html

UK charity Lyme Disease Action have submitted their views to the IDSA: http://www.lymediseaseaction.org.uk/latest-news/idsa-guidelines/

(ILADS updated their guidelines in 2014: available for download at): https://ticktalkireland.files.wordpress.com/2014/08/ilads-2014.pdf (PDF)

Links: Some useful links on our site are regularly updated – folks may be interested in the Irish related articles section, chronic Lyme section, or testing section. We have lots more useful information in our links page, all in alphabetical order for easy access!

Enjoy & remember to stay safe this Spring & Summer!  http://www.ticktalkireland.org/ticks.html

15 ticks Portumna Sep 18 2011_1

Ticks collected in Portumna Forest, Co Galway Sep 2011

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Luna has landed!

luna front coverOur new children’s book ‘The Adventures of Luna & Dips’ has been a great hit. We managed to find a home for all our copies before they’d even arrived from the printers. Thanks to all the schools who have asked for copies for their children. Teachers came to me saying they knew of someone with lyme disease, a sister, a friend, their own family & in some cases children in the class had been sufferers too. Hopefully the book will help to prevent more cases of the disease by raising awareness.

Click below to read Luna on kindle (kindle apps can be downloaded for laptops, phones & PCs):

Adventures of Luna & Dips

Luna & Dips is copyrighted by Jenny O’Dea – all rights reserved.

If you like Dave’s wonderful illustrations feel free to check out his website at: http://http//www.talenthouse.com/davefarrelly or his facebook page.

Download a poster for schools

Download notes for teachers
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Happy Lyme Awareness Month 🙂

Well the month of May is International Lyme Awareness Month & Tick Talk are celebrating by offering several special offers on our merchandise. As well as the current offer of 20-25% you can now also receive the following…

* For any orders over 15 euros – receive a FREE lyme ribbon with gold pin

* For any orders over 25 euros – receive a FREE set of tick pincers by care plus & ribbon

* For any orders over 35 euros – receive a FREE Tick Talk Ireland hi-vis vest, tick pincers plus lyme ribbon

All this ON TOP of saving up to 25%. Amazing value but only available until end of May & while stocks last.

To hop to our merchandise store head on down to: http://www.ticktalkireland.org/merchandise.html

Please note that discounts (20-25%) will show up in shopping cart, advertised prices on site are before discounts applied!
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More research needed

looking glassCan you help pave the way for research? Dr Eva Sapi, a speaker at our lyme conference last year has been doing some amazing research. From looking at biofilm, to the types of herbs that tackle lyme to the most effective antibiotics. She has also been involved in the new test offered by Advanced Labs. Now she is looking for funding to help her team acquire a very high end microscope.

If you can help with pledges no matter how small the website is: http://www.indiegogo.com/projects/stop-the-suffering-with-lymedisease-org-support-dr-sapi-s-research?c=home

Tick Talk fully supports those who look beyond the narrow view that lyme cannot be chronic & any scientists or doctor that strives hard to find better treatment & testing for lyme patients are heroes in our eyes!
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Get ready to rumble!

Finally a reminder that the Worldwide Lyme Rally is due to take place May 10/11th at a number of venues across the world. The UK have a terrific website explaining their mission at: http://worldwide-lyme-protest.org.uk/

Check out this video explaining how the worldwide protest project was started..

This video show patients around the world including some patients from Ireland..

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luna front coverluna back cover

New Book out written by Jenny O’Dea

Great news – the new book ‘Adventures of Luna & Dips’ is now completed & available FREE to schools & members of the public (for Irish residents only!). Suitable for ages 8/9 & up, the book written by Tick Talk Ireland’s co-founder Jenny O’Dea aims to encourage people young and old to learn about ticks and the dangers of Lyme disease. Please note that supplies are limited and will be offered on a first come first served basis. Packs for schools will also include leaflets for the parents, a poster for the school, plus information for teacher including tips on prevention, colouring sheets, plus child friendly websites for more information.

NB: All books have now been claimed, the demand exceeded expectations however free downloads are available below:

Some useful links – hit back button to return to page:

Download the Adventures of Luna & Dips for free
Download ‘Luna Says’ poster for schools
Protecting your children
Lyme disease handout
Lyme disease Leaflet
Tick study results 2013
Luna to colour, Fantaz to colour & Dips to colour
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Tick Awareness Week

The HPSC have set the week of 15th April aside for Tick Awareness Week. They have published information on the Epi insight page.

Please note that Tick Talk Ireland are very concerned about the testing available here in Ireland & the possible high level of misdiagnosis. The article suggests that based on 10 cases of neuroborreliosis per year that other (non neuroborreliosis) cases must equate to roughly 50 cases per year, however we feel that neuroborreliosis cases may be under reported due to the cross over symptoms with MS & ME. Also the notifiable cases only allow for lab confirmed diagnosis.

The test kit manufacturers themselves say that a negative Lyme test does not rule out infection however a negative test will not lead to a case being notified at all & most likely be diagnosed as a case of ME underplaying the real numbers. Similarly on the other end of the scale we may have people who are treated at early stage (such as rash or flu) who may never reach stage 3 neuro stage. If a doctor is good at treating early in one area then there’d be less chance of more advanced cases, in other area doctors may not be on the look out for Lyme cases so more chance of Lyme cases becoming more serious. We had hoped that ALL cases would be tracked, ie early & late stage to allow for more of a guide on clusters of cases & true numbers. Whilst it is clear that there will never be a 100% accurate way of tracking Lyme we do feel that the current method falls short! For details of our meeting with the Health Protection & Surveillance Centre in January 2013 and the concerns we have, head on down to our news update in Feb.

The HPSC have also published awareness packs/posters for travellers and children – these are produced by the European CDC for endemic countries. As always BADA have produced some great information for their Tick Bite Prevention Week in March – check out their web page for more details.
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Surveys now updated!

Good news, our tick and Lyme surveys have been updated. These are rolling surveys reported every 12-18 months – the surveys are still open for completion – if anyone sees ticks during the year do let us know – the Lyme survey is designed for one time completion only but the tick survey can be completed on an ongoing basis in case more ticks are spotted!

Tick Talking While You’re Walking – Tick Survey Ireland


https://www.surveymonkey.com/s/B3XTJL2

Since May 30 2011 we’ve been asking members of the republic to report on any ticks spotted here in Ireland. As of Jan 31, 2013 a total of 82 people have responded so far.

Results can be downloaded here: Tick Talking Results Jan 2013 (word) SurveySummary_Tick Talking Jan 2013 (excel)

The above text file also includes details from our vet study.

Lyme Survey

In 2009 Tick Talk Ireland produced a survey to Irish sufferers which is updated on regular basis to review trends.

http://www.surveymonkey.com/s.aspx?sm=qqrP_2bn_2bqPQSryRKHMTyJ1w_3d_3d

To qualify, the respondent must be a Lyme sufferer who is:

* Living in Ireland – infected by Lyme here or abroad or
* Not living in Ireland – but infected within Irish Counties

81 people replied to the survey during the months of July 2009 to December 2012:-

The latest results can be downloaded here as follows- Results – Lyme Survey Dec 2012 (word) SurveySummary_Lyme Survey Jan 2013 (excel)

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Big Sale in our Store!

Great news – Tick Talk Ireland have reduced all our stock – you can make a saving of between 20-25% off all our merchandise through the months of April and May in time for tick & Lyme awareness months. To purchase tick repellants, tick twisters, handy tick cards with magnifying glass, copies of the award winning documentary Under Our Skin, Lyme ribbon & pin, awareness bugs, Find a Cure bangles or Lyme Survivor Bracelets plus copies of our conference DVD head on down to: Merchandise Store

NB: The sale prices are reflected when you place items in shopping cart!
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Lyme Protests Around the World – sufferers speak out

May 10th & 11th are 2 dates set for Worldwide Lyme Protest. Why? Because patients feel that their voices are not being heard – they are worried about testing (the US CDC says it should be for surveillance and not for clinical diagnosis, the European CDC says testing needs to be improved), new tests are being released annually and yet due to rigid rules no other tests are allowed to be used by consultants other than the flawed 2 tier system. Studies have shown that seronegative Lyme exists and yet repeatedly patients are denied treatment based on negative serology which can be hampered by lack of immune response, difference in strains of borrelia, even antibiotic therapy can abrogate response. Once a patient does get diagnosed they may only be treated for a short length of time and deemed to be cured despite animal studies showing that Lyme can persist the IDSA refuses to accept this. All too often a bullseye rash is considered the most telling sign of Lyme when in some studies they suggest that the bullseye rash may often be homogeneous, not in rings but various other shapes or no rash at all! For more thoughts on Lyme & its many challenges check out our post ‘mythbusting‘.

Ireland has no leader for an Irish protest however our nearest neighbour (UK) has a great site set up at: http://worldwide-lyme-protest.org.uk/

We at Tick Talk Ireland would like to add our ‘virtual’ support and have created a page on facebook – there we will post details of lyme videos, posters & pics of sufferers plus quotes of relevance to the Lyme controversy – my favourite is a quote from the scientist Dr Willy Burgdorfer, who identified the causative agent of ‘borrelia burgdorferi‘ in ticks:

He says during an interview with the producer of Under Our Skin:

“The controversy in Lyme disease research is a shameful affair. And I say that because the whole thing is politically tainted. Money goes to people who have, for the past 30 years, produced the same thing—nothing. Serology has to be started from scratch with people who don’t know beforehand the results of their research. There are lots of physicians around who wouldn’t touch a Lyme disease patient. They tell the nurse, “You tell the guy to get out of here. I don’t want to see him.” That is shameful. So [this] shame includes physicians who don’t even have the courage to tell a patient, “You have Lyme disease and I don’t know anything about it.” Amen!

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Luna & Dips Tick to colour in!

As many of you know we’re hoping to raise money to help publish the children’s book ‘The Adventures of Luna & Dips (tick)’. The book is written by Jenny O’Dea of Tick Talk Ireland. We’d love to make Luna available to schools, book shops & libraries but we cannot do this without your help!

Dave Farrelly, Luna’s illustrator has kindly offered colouring-in sheets for children to use, to help advertise our cause. Titles of each character are printed on each poster & looks to be a lot of fun. Feel free to download & print the sheets for your child to colour in. If you have friends too with young children we’d be delighted if you could forward onto them to help spread the word 🙂

PDF colouring in sheets are available for download below..

Luna Tick to colour in (PDF)

Fantaz Tick to colour (PDF)

Dips Tick to colour in (PDF)

Our fundraiser ends mid December – all pledges raised so far will be lost unless we can reach our target.

Luna & Dips illustrated by Dave Farrelly

Made it in the news!

Details of the Luna project was recently published in the Galway Independent.

Promotion video

To check out our educational video go to:

Thank you for any help you can give to help us get Luna printed & published.

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The Adventures of Luna & Dips

New book written by Jenny O’Dea from Tick Talk Ireland. Can you help us get Luna & Dips published?

Luna & Dips illustrated by Dave Farrelly
Check out our new fundraising page at: http://www.fundit.ie/project/the-adventures-of-luna–dips

Educational book to help children learn about ticks, transmitters of Lyme Disease

Luna is suitable worldwide to help warn school children about ticks & their life cycle. Awareness is key to help prevent Lyme Disease!

We’re hoping to raise 1250 euros by December but we need your support. Any donation received big or small will be a massive help towards getting Luna published & made available to school children & the public. Rewards are offered depending on your level of pledge including free t-shirt, tick pincers, certificate, plus signed copy of the completed book. Pledges over 200 euros will also receive a voucher for a complimentary stay at Clontarf Castle Dublin! (Please note that rewards will be granted once funds are collected after the target has been reached).

Why not check out our publicity video at:

Thank you for any help you can give to help us get Luna printed & published.

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Update Apr 2015!

NEW for 2015!

Tick Talk Ireland has released ‘The Adventures of Luna & Dips‘ worldwide on kindle, an educational & fun book on the life cycle of ticks, where they live & how they feed – a mix of facts, fictions & illustrations. Tips on prevention are included. Suited to ages 10 & up.

Those without kindle can download an app to view on laptop, phone or PC!
Can search on any amazon site worldwide using title or product code B00VS46RIQ

Update May 2013!

The Adventures of Luna & Dips has been distributed to schools in various parts of the country. Copies are now available for download. Check out our new post at: https://ticktalkireland.wordpress.com/2013/05/02/news-updates-may-2013/

Update April 2013!

luna front coverluna back cover

 

New Book out written by Jenny O’Dea

Great news – the new book ‘Adventures of Luna & Dips’ is now completed & available FREE to schools & members of the public (for Irish residents only!). Suitable for ages 8/9 & up, the book written by Tick Talk Ireland’s co-founder Jenny O’Dea aims to encourage people young and old to learn about ticks and the dangers of Lyme disease. Please note that supplies are limited and will be offered on a first come first served basis. Packs for schools will also include leaflets for the parents, a poster for the school, plus information for teacher including tips on prevention, colouring sheets, plus child friendly websites for more information.

NB: All books have now been claimed, the demand exceeded expectations however a kindle version & accomanying downloads are available below:

Some useful links – hit back button to return to page:

Buy the new kindle version on amazon **NEW April 2015
Download ‘Luna Says’ poster for schools
Protecting your children
Lyme disease handout
Lyme disease leaflet
Tick study results 2013
Luna to colour, Fantaz to colour & Dips to colour
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NB: The final print of Luna & Dips released in April 2013 is made more child friendly & comes interspersed with facts on ticks, symptoms of lyme disease & tips on prevention, and includes new illustrations by Dave Farrelly, however below is a sneak peak of the original story!

Part One – Luna (tick) the larval tick gets some advice from Dips (tick) in learning to quest for food Picture – Luna Believes she can fly
Part Two – Luna manages to find her first host, a mouse, & is well on her way in her quest to grow
Part Three – Luna gets the scare of her life, the poor mouse is being chased by a fox, but will she survive? Picture – Luna’s 1st Adventure!
Part Four – Having survived her first scary adventure, Luna finds a cosy place to moult into a nymph
Part Five – Its autumn when Luna wakes up & everything has changed, she feels all alone in the world & remembers the kind words of her new friend Fantaz (tick)
Part Six – Luna snuggles down for the winter & emerges in spring hungry for a new feed, will this be her chance?
Part Seven – Luna was lucky enough to find a new host, she dreams of becoming an adult, but could her dreams come true?
Part Eight – Luna feels very happy with herself, she drops off her 2nd host & looks forward to being an adult, but wait, trouble is ahead!

Luna has an important message!

 

The Adventures of Luna & Dips

New book written by Jenny O’Dea from Tick Talk Ireland. Can you help us get Luna & Dips published?

Luna & Dips illustrated by Dave Farrelly
Check out our new fundraising page at: http://www.fundit.ie/project/the-adventures-of-luna–dips

Educational book to help children learn about ticks, transmitters of Lyme Disease

Luna is suitable worldwide to help warn school children about ticks & their life cycle. Awareness is key to help prevent Lyme Disease!

We’re hoping to raise 1250 euros by December but we need your support. Any donation received big or small will be a massive help towards getting Luna published & made available to school children & the public. Rewards are offered depending on your level of pledge including free t-shirt, tick pincers, certificate, plus signed copy of the completed book. Pledges over 200 euros will also receive a voucher for a complimentary stay at Clontarf Castle Dublin! (Please note that rewards will be granted once funds are collected after the target has been reached).

Why not check out our publicity video at:

Thank you for any help you can give to help us get Luna printed & published.

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If Ticks could Talk Part Eight (my name is Luna)
Written by Jenny O’Dea, Ireland © Jun 2012

My name is Luna & this is part eight of my story. My warm shaggy host is perfect for me. Those long ears allow me to stay well hidden; I haven’t been spotted at all & able to get a good meal. Over several days I seem to be stretching bigger & bigger, gorging myself on the warm tasty blood. Yum, this is exactly what I need to help me nourish myself & soon I will get to be an adult.

‘This is my destiny, I can drop off now & go & hide & when I emerge I shall be an adult’, I thought to myself. ‘What an amazing feeling that will be.’ I remembered back at my adventure so far, the scary ride on top of a mouse, in hot pursuit a hungry fox; my fall into the water & my lucky find, a swimming dog who managed to save me, & here he is giving me my feed, what luck had befallen me. I remember my friend Dips telling me that not many ticks survive, 2000 eggs may hatch but not many will reach adulthood, so I’m really feeling content with myself.

With that thought I wriggled myself loose from the shaggy dog’s ear & dropped to the ground. It was strange the ground, not grassy or woody, no flowers or twigs or water, just some shaggy *fur, a bit like my host. I remembered that my host brought me into a big box where the 2 legged people live, ‘they line their boxes with fur?’ I thought. ‘How peculiar!’

I began to feel very sleepy, I knew that I can only reach adulthood after a moult & to moult I MUST find a safe place to hide. It was very scary being in this fur lined world I was not used to, I wasn’t really sure which way to turn.

Just then I heard a shrill scream, ear piercing it was (& I don’t have ears!). A 2 legged human, quite short with freckly skin ran over to me & pointed, she was screaming & crying ‘mummy, mummy.’ I really couldn’t run I was so bloated from my ex-host’s blood. ‘Oh what to do’, I thought to myself. I felt powerless, unable to move, unable to think. I found myself rising high into the air, something or someone got a hold of me & placed me into a clear case & sealed the opening. ‘OK, this isn’t right’, I thought to myself, ‘how can I get to my next host in here? Where did all the grass & trees go?’ I could hear muffled voices but had no clue what was being said. It was then I felt sad, I realized that my journey had ended, without a new host I was never going to reach adulthood. I thought back to my friends Fantaz & Dips & how they helped me on my journey, on my quest. I wondered what they were doing now. Maybe they were lucky & reach adulthood, I do hope so. The End!

The girl who spotted Luna lying on the rug (*Luna thought this was fur!) called her mum in quick. Her mum immediately put the engorged tick safely into a clear plastic bag & sent Luna off for testing to see what infections she maybe carrying. Thankfully she was disease free & the dog suffered no ills from the bite, maybe a little bit of soreness. If Luna’s first host, the mouse, was infected with Lyme disease or any other tick-borne disease she would have been able to pass this onto the dog during her feed. NB: it’s possible for ticks to pass along infections without deer being present. Mice, birds, hedgehogs & squirrels can all carry Lyme disease as well as the large hosts such as cattle, sheep, horses & deer. Humans & pets are incidental hosts, the ticks savour warm blood & aren’t too fussy!

A final word from the author – ticks cannot write, see, speak or hear – this whole story was a figment of Jenny O’Dea’s imagination & at no point was any animal harmed in the making of this story 😉

Jenny O’Dea, Ireland © Jun 2012 – if any of this text is used please give credit to the author & blog site!

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