Tick Talk Ireland
Do you have strange symptoms that no-one can diagnose such as joint pain, muscle aches, fatigue, tingling, weakness, memory loss, brain fog, dizziness, nausea, swollen glands & recurring throat & ear pains?
Have you been diagnosed with M.E., Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS), Multiple Sclerosis (MS) or Parkinson’s Disease?
Do you suspect you have Lyme disease? (The symptoms of Lyme are varying in nature but can mimic many of the illnesses listed above)
* Less than 50% of sufferers experience a Bulls eye rash?
* Less than 50% of sufferers receive a positive blood test?
Not everyone will remember being bitten by a tick.
This shows how difficult it is to diagnose this disease!
Ticks are carriers of a devastating disease called Borreliosis or Lyme disease & may also transmit many other co-infections. Lyme disease & other tick-borne diseases can infect the cardiac & endocrine system; can cause joint pain, fatigue & if untreated can lead to worsening neurological symptoms.
To protect against ticks always:
* Carry tick repellents & spray onto outer clothing before any countryside activities
* Keep all trouser legs tucked in & wear shiny material to prevent ticks hanging onto clothes
* Stick to footpaths & avoid brushing against long grass or going under overhanging branches
* Always check clothing & body when getting home, including all the family & pets
If you know of anyone who may be affected or who are at risk from tick bites please help us to spread the word!
Important Note: This website is intended for information purposes only and should not be substituted for medical advice by a practicing physician..
As from September 2011 Lyme is now a notifiable disease, however only lab confirmed neuroborreliosis cases are reportable to the authorities
Contact us at: info (AT) ticktalkireland.org
** Update Feb 2017
Due to retirement of the blogger, this site will no longer be regularly updated, however you will find a HUGE amount of info contained in the links section plus in the menu items down the right hand side. The links section is suitable for health professionals, scientists, students & the inquisitive patient alike!
Our support group continues to thrive with the help of a very small but dedicated team of volunteers. Most of the support role takes place in the facebook group & email support is sometimes provided but sadly we cannot offer telephone support. All volunteers are sick patients themselves or carers & so please be patient if awaiting a reply.
Meanwhile here’s a look of what we have achieved over the years..
Did you know that since 2011 we have printed 46,000 leaflets for distribution around Ireland? We have produced 2,600 books all free to schools & librairies, done countless talks, distributed 4,000 business cards & 750 awareness ribbons.We also sold 100 conference DVDs plus over 500 tick twisters.
Our book is now out of print however a copy is available on kindle worldwide (apps for other devices available for download via amazon).
In 2012 we organised Ireland’s very first Lyme disease conference attracting scientists, lyme & lab specialists from Germany, UK & the States. We have been on Irish radio & US radio (Katina Makris show) along with Nicola Seal from the UK group. We have put together a video to support the worldwide protest & answered way too many emails to even count!
Tick Number Surveys plus Lyme Patient Surveys have been published through the years, the latest reports are available via: http://www.ticktalkireland.org/surveys.html
(please note that our surveys will be stopped when they reach a limit but all are currently open as of Feb 2017).
For more on what we’ve been up to check out…
(Please note that we have since stopped our charitable activities & continue more in a support group role)..
Meanwhile, thank you all hugely for your great support!
** Update Sep 2016
Irish TV documentary ‘Living with Lyme Disease’ will be aired on Tuesday October 11th 2016 at 2100hrs(9pm) on IrishTV, Channel 191, Freest 400, irishtv.ie.
This will be available in Northern Ireland and The UK & will also be going out on other channels worldwide on Irish TV.
For more details plus interview with the documentary team & trailer go to:
See our blog post to see an excellent video of the May conference plus details of a meeting held at the Dail:
** Update June 2016
In May (Lyme awareness month) Tick Talk volunteer Ann Maher hosted Ireland’s 2nd Irish Lyme disease conference, plus talks were held in a ladies group in Galway & a school in Wicklow (see our past events section for more) .
Living with Lyme Disease – Irish documentary team looking for backers, take a moment to watch the video, it’s heart wrenching..
** Update May 2016
Have recently updated some items in our links section (inc Lyme on radio & Irish related studies). Check out what’s been updated lately here at: https://ticktalkireland.wordpress.com/lyme-links/
Plus our new post Forward Thinking published end of April 2016: https://ticktalkireland.wordpress.com/2016/04/29/forward-thinking/
The week beginning May 2nd was Lyme awareness week in Ireland – here is a statement by the HSE: http://www.hse.ie/eng/services/news/media/pressrel/lymedisease.html
Don’t forget to check out Tick Talk Ireland’s Lyme prevention book, suited to children ages 8 & above plus adults alike. All proceeds to towards keeping our websites & surveys going: https://www.amazon.co.uk/Adventures-Luna-Dips-Jenny-ODea-ebook/dp/B00VS46RIQ
A reminder too that our surveys are still open, if anyone spots a tick (in Ireland) or is a Lyme patient bitten in Ireland (or bitten abroad but living in Ireland) then surveys can be completed here at: http://www.ticktalkireland.org/surveys.html
** Update Nov 2015
We have made 2 recent post with lots of news:
updates for autumn 2015: https://ticktalkireland.wordpress.com/2015/09/08/updates-autumn-2015/
updates for winter 2015:
Plus newcomers guide updated:
Check out our links section which is updated throughout the year (dates added when updated 😉 )
Don’t forget to grab a copy of Luna on kindle (those without kindle can download an app via amazon to read on phone, laptop or PC!) All proceeds go towards keeping our websites going – it’s a fun & educational book written by Jenny O’Dea of Tick Talk Ireland – hope you like it!
The Adventures of Luna & Dips (tick) – prevention tips included.
** Update April 2015
News Updates: Check out our latest blog post with lots of ‘new’ news including the release of Luna & Dips (tick) on Kindle..
** Update March 2015
Conferences: Conferences are available in countries across the world, including testing, treatment & alternative therapies, for a list of some of them check our menu down the right hand side under Lyme Conferences…
Meetings: Tick Talk member, Ann Maher is organising a meet up at the Dail (Irish government buildings) for patients to speak to TDs, I think the date is 21st April at 2PM, there’s limited numbers on who can attend.
In May there will be a meetup organised by Ann on Sunday May 17th at the Anner Hotel, Thurles, Tipperary at 1pm, more details available in the events section of our facebook page (do let Ann know if you’re planning to attend).
(Please note the page is a closed group & therefore only accessible to group members – to join the group first sign in to facebook then click on the request to join button – all advice on the aboard is from personal experience of members & should not be used to replace medical advice from your practioner..)
Politics: On March 3rd 2015 Dan Neville TD held a discussion with Minister of Health Ireland, for details plus our response to the dicsussion head on down to: https://ticktalkireland.wordpress.com/2015/03/11/big-lyme-debate/
Children’s Book: Our children’s book that was published in 2013 is due for release on kindle shortly, proceeds will go towards keeping the websites & surveys running for the foreseeable future, more info as it unfolds 🙂
Surveys: If anyone would like to report ticks being spotted, or new lyme cases we have surveys that remain open & results are published every 12-18 months. Copies of results are sent to the Health Protection & Surveillance Centre in Dublin. The latest results & links to complete them are available at: http://www.ticktalkireland.org/surveys.html
We have published four sets of results so far, 2009, 2011, 2012 & 2014. Our next update is due to be published this summer. I’m hoping to do a compare & contrast survey of how things have changed since the first one in 2009, some promising changes have been made but still a long way to go for sure.
March was declared the Take the Bite out of Lime (Lyme Disease Challenge). Patients, doctors & supporters around the world are taking a bite out of lime to raise awareness of this life changing disease, some donations are being made to ILADS, the International Lyme & Associated Disease Society. For more information head on down to: http://lymediseasechallenge.org
Here’s a little something we created in support! (Click on pic to enlarge.)
For links on transmission of Lyme bacteria go to: https://ticktalkireland.wordpress.com/lyme-links/transmission/
Meanwhile have a safe time this Spring & Summer.
** Update November 2014
In a bid to tidy up our Irish related articles section we have now separated out Irish Radio, News Articles & Scientific Studies into 3 separate sections detailed below…
Lyme on the Radio:
Students & Medical Professionals as well as Patients & Newcomers may be interested in our links section, which contains a wealth of information useful to all https://ticktalkireland.wordpress.com/lyme-links/
Also down the right hand side of our menu we have a selection of support groups, guidelines, conferences, Tick Talk articles & much more – hope you enjoy!
Newest Blog Post:
Why not check out our recent post: Herx Rattle & Roll! 🙂
** Update August 2014
Read our new blog post – hidden in plain sight..
*Staff Awareness Packs are available by contacting our information officer mary (at) ticktalkireland.org. We also have a limited supply of leaflets, if you are able to help with distribution feel free to contact us at info (at) ticktalkireland.org (replace at with @ before sending!)
NB: We at Tick Talk Ireland support ILADS & endorse their New Guidelines issued in 2014 as the best source of information regarding the treatment of Lyme disease.. We also support Burrascanos Treatment Guide & The German Borreliosis Society Guide for supportive information.
** Update June 2014
Tick Talk published their latest survey results in May 2014. For full reports go to: https://ticktalkireland.wordpress.com/2014/05/28/survey-results-2014/
May 19-23 was set as Tick Awareness Week by the HSE. They have updated their lyme leaflets & posters for travellers & children – more info at: http://www.hpsc.ie/A-Z/Vectorborne/LymeDisease/Informationforthepublic/
Volunteers Mary & Ben held an awareness table at the Labane Farmer’s Market, Co Galway in May 2014 http://www.ticktalkireland.org/pastevents.html
Tick Talk volunteer Ann, held an awareness event in Thurles on May 18th. More than 40 patients or loved ones attended on the day & mini talks were held by volunteers on the subjects of testing & treatment… For a photo of the gathering head on down to: http://www.ticktalkireland.org/pastevents.html
In April Tick Talk’s co-founder Jenny O’Dea & UK blogger Nicola Seal were invited as guests to Katina Makris’ Lyme light Radio show in April 2014.. http://thedrpatshow.com/shows/mak-140402-odea.mp3
** Update Dec 2013
Hot News! A health committee meeting on Lyme Disease was covered in the government offices, Dublin, Ireland on 21st November 2013. For more details head on down to….
** Update Oct 2013
Check out our notes from the Public Health England open meeting on Lyme Disease Oct 9th 2013
** Update Sep 2013
Grab some freebies with your donation!
Can you help us raise funds for printing? Tick Talk Ireland have distributed several thousand leaflets this summer alone, some accompanied copies of the new children’s book on ticks which went to schools across Ireland, others have been distributed at 3 awareness talks held during the year & a chemist in Kinvara Co Galway recently handed out 400 during a window awareness display. We are now in desperate need of new funds to help us print more leaflet to raise awareness. For a limited time only we’d like to offer this special incentive:
The following donation levels will bring some great rewards!
5 euro donation receive a free awareness ribbon with gold pin
10 euro receive a bangle & ribbon
15 euro tick card, bangle & ribbon
20 euro receive a conference dvd, tick card, bangle & ribbon
25 euro keyring, conf dvd, tick card, bangle, ribbon
30 euro tick test, keyring, conf dvd, tick card, bangle, ribbon
NB donations are no longer being accepted as we have transitioned back to support group status!
Luna goes to the library!..
During August Tick Talk was able to send remaining copies of their new children’s book ‘Adevntures of Lune & Dips’ to several libraries across Ireland accompanied with a poster to remind children to look out for ticks & what to do when bitten!
Lyme talks on the radio
August & early September saw some radio chat shows (RTE Liveline & Galway Bay FM) cover Lyme disease stories. To listen back to the podcasts check out our post at: https://ticktalkireland.wordpress.com/lyme-links/lyme-on-radio/
Bargains still to be had
Tick Talk are running down their merchandise supplies & some stocks such as tick repellants have now been sold out. We do still have available tick tests, twisters, find the cure bangles, lyme survivor bracelets, awareness ribbons & conference DVDS. All with 20-50% off (savings reflected when added to shopping cart). All items are going, going, soon to be gone! Grab those bargains while ya still can 😉 http://www.ticktalkireland.org/merchandise.html
** Update Aug 2013 (version 2!)
** Update Aug 2013
New post has been created to provide info for newcomers – hope you enjoy!
Tick Talk has been invited to 3 awareness talks so far this year, 2 for health & safety organisation IOSH & 1 for staff as Lisheen Mines. Thank you to all our volunteers Ben, Mary, Sean & Annette who helped out during the events 😉
Tick Talk have been offering special savings on all our stocks during the summer – only available while stocks last & for a limited time only. To grab your special deal (from 20-50% off) head on down to: our store – please note savings are reflected in shopping cart!
** Update May 2013 (version 2!)
Check out some lyme stories of Irish patients plus our new video at: https://ticktalkireland.wordpress.com/2013/05/09/worldwide-lyme-rally/ Plus news of a re-print of our new children’s book due to popular demand & another health & safety talk taking place in Kilkenny.
** Update May 2013
The Adventures of Luna & Dips has been distributed to schools in various parts of the country. Copies are now available for download. Check out our new post at: https://ticktalkireland.wordpress.com/2013/05/02/news-updates-may-2013/
Also see some new videos create d for the Lyme Disease Protest courtesy of Lisa Hilton…
** Update Apr 2013
The Adventures of Luna & Dips written by Jenny O’Dea of Tick Talk is now available free to schools & members of the public. For more details check out our latest post at: https://ticktalkireland.wordpress.com/2013/04/08/news-update-spring-2013/
Also included: news of some great discounts in our store (save up to 25% through the months of April & May). Find out about the HPSC’s article for Tick Awareness Week, updates for our Lyme & tick surveys plus details of the worldwide protest rally in May!
** Update Feb 2013
Check out our latest news update including our meeting with the Health Protection & Surveillance Centre:
** Update Dec 2012
Check out our latest news updates at:
Learn about the new children’s book written by Jenny O’Dea of Tick Talk Ireland, updates on our conference DVD, some gift ideas for christmas including Under Our Skin DVD with free car sticker, lyme survivor bracelets & find a cure bangles plus our recent letter to the infectious disease society of Ireland 🙂
** Update Sep 2012
Some projects undertaken during the summer:
Tick Talk’s inaugural conference held in Clontarf Castle Dublin,June 2012 was a great success. A full review is available on our main site..
Photos & conference DVD will be available in the coming months – an update will be posted when available.
Luna has Landed..
The compelling story of ticks Luna & Dips has now been completed. We are currently undergoing negotiation with a publisher & illustrator & hope to have the story in the series ‘If Ticks Could Talk‘ published in the New Year.
A tick sweep was undertaken in Portumna Forest, an area to the East of Co Galway.
Ticks were readily found in the picnic area, we did not have to go in the forest to find them. I believe that animals (deer, mice, birds) are attracted to crumbs left by picnickers causing ticks to drop off their hosts close to the picnic tables (even in the short grass). We were able to collect larvae (too numerous to count), nymphs, adult males & adult females. Precautions are most definitely needed, particularly in forested areas that contain picnic tables..!
Mary & Ben our kind Galway based volunteers helped us inform unsuspecting public about the dangers of Lyme Disease. They attended agricultural events at Athenry & Adrahan (Co Galway) & helped to handout awareness leaflets aswell as provide useful tick removal tools for prevention.
During May a volunteer fair was held in Eyre Square shopping centre. We had a rotation of volunteers to help man the stall including the 2 Sean’s, Ben, Mary, Jenny, Janice & John. We had no joy recruiting volunteers however we hope it has increased our profile.
Letter of Concern..
During Spring 2012, Tick Talk Ireland submitted a Letter of Concern (PDF) regarding recognition, testing, co-infections (doc file), transmission & restrictive guidelines. This was sent to Dr James Reilly, Minister of Health; Dr Paul McKeown, Health Protection & Surveillance Centre & the Director of the EU. A copy was also handed into 10 Downing Street during a rally held by Lyme Patients in the UK.
** Update Feb 2012
We’re excited to announce our first Lyme conference in Ireland.
Half day Tuesday 5th June – protection & prevention tips, plus tick-borne infections in animals
Full day Wednesday 6th June – lyme disease in humans including testing, treatment & research
Clontarf Castle, Dublin (close to the airport, city centre, motorways & ferry terminals)
The conference will be suited to the following audience:
Tuesday session – members of the public who enjoy walking, camping or hunting, pet owners, farmers, park rangers & vets
Wednesday session – patients of diagnosed or suspected tick-borne diseases, doctors, nurses & interested scientists
For details on registration & starting times, how to book & where to stay hop to: Lyme Disease Conference June 2012
** Update Jan 2012
Due to changes within facebook, topics on the discussion board are no longer available & all the links have now been lost. Luckily hard copies were kept of all the links & articles & in the coming weeks they will be re-built on our site. An update will follow shortly once all is ready for viewing.
** Update November 2011
As from September 2011 Lyme is now a notifiable disease, which means that all cases are reportable to the authorities! – Feb 2012 update: It appears that only lab confirmed neuroborreliosis cases are being reported, this has the potential to miss many cases & does little in tracking true numbers of the disease, see my comment for more..
Following a meeting with the Deer Alliance & talk by chair Pauline Reid, several ticks were collected & sent for analysis to Germany. Lyme leaflets & twisters were quickly snapped up on the day!
** Update October 2011
Tick Talk Ireland completed their very first tick sweep in Ireland. More than 15 ticks including nymphs, larval ticks & adults were readily found around the picnic area in Portumna Forest, Co. Galway. More tick sweeps are being planned for 2012.
Lyme Research UK & Ireland led by Kate Bloor has released a new survey for Lyme disease patients in UK & Ireland. More details available at: https://ticktalkireland.wordpress.com/2011/10/17/surveys-sweeps/
Special Offer available until Christmas 2011:
* Donate 10 euro or more & receive a free ‘find a cure’ lyme green bangle.
* Donate 15 euro or more & receive a free pack of 2 tick twisters.
* Donate 25 euro or more & receive both items.
Offer to end 31st December.
NB donations are no longer being accepted as we have transitioned back to support group status!
** Update August 2011:
New merchandise available including Lyme awareness bracelets available at: http://www.ticktalkireland.org/merchandise.html
** Update July 2011:
Final to be announced at the end of the tick season in November.
** Update June 2011:
Newly released for 2011:
Survey – Tick Talking While You’re Walking: if you see any ticks in Ireland let us know & we may be doing some tick sweeps in your area!
Survey – Vet Study Ireland: this is to encourage a record of ticks found in farm & companion animals as reported by vets nationwide.
For all our other surveys go to: http://ticktalkireland.org/surveys.html
** Update May 2011:
On the 1st of May Tick Talk Ireland held their first fundraiser event, an evening of music and entertainment. We are pleased and proud to say it was a great success and an evening which was enjoyed by all. In total we raised just over €2000 during the bank holiday weekend which was raised from a street collection on Friday, followed by a sponsored walk on Sunday afternoon followed by the main event on Sunday evening. We would like to thank everyone who helped, including our sponsors, the band Fusion, the walkers and all who attended the music night.
For photos from the night please click here.
** Update April 2011:
Our new logo has now been launched. A big thanks to Pauline Reid who came up with our final design – I think it looks terrific. Sadly, no other designs were received apart from a bullseye design by Jenny O’Dea which will be used in an upcoming article 🙂
Tick Talk Ireland submitted a letter of inquiry to the new Minister of Health, Dr James Reilly, regarding making Lyme a notifiable illness in the new government. Please find below his reply:
4th April 2011:
The Minister for Health, Dr. James Reilly, T.D., has asked me to thank you for your recent letter concerning the notifiable status of Lyme Disease.
The Minister has asked me to inform you that as part of a review of Infectious Diseases Regulations being undertaken in the Department, it is proposed that Lyme Disease will be included as a notifiable infectious disease under proposed new legislation.
See our petition section on Facebook for more info!
** Update March 2011:
Tick Twisters now available for sale!
** Update February 2011:
The EU petitions committee have responded to our petition (information will be forwarded to the European Centre for Disease Control – (ECDC)
For response letter go to our petition section on Facebook for info!
Tick Talk Ireland is now a registered charity – aiming to raise awareness, prevention & treatment of Lyme in Ireland through public awareness venues, printing of Lyme prevention leaflets, encouraging doctors to attend Lyme seminars & training & encouraging further research into the management of tick-borne disease.
A new website has been created at www.ticktalkireland.org
** Update December 2010:
Tick Talk Ireland’s petition to the European Parliament petitions committee has now been accepted.
Go to our petition section on Facebook to see more!
Tick Talk Announces their Design A Logo Competition. Closing Date 31st March 2011. Prizes offered.
For more details go to: Design A Logo Competition
** Update July 2010:
If any family or friends are thinking of visiting the national park areas of Ireland, hows about completing this new survey?
Details as follows:
A Tick in Time Saves LYME!
Tick Talk Ireland are concerned about the lack of public awareness regarding the dangers of Lyme disease.
The HPSC have put together an awareness leaflet to be distributed to Coillte, the National Trails Office, National Park Visitors Centres and local authorities.
It is our wish to ensure that all major public areas have awareness leaflets available to the public, or where there is a ‘leave no trace policy’ that a poster at least is displayed.
To assist us in checking if information is reaching the public we need help with the following survey. Those visiting national park areas or nature trails are welcome to participate. Follow up surveys can also be completed if you visit again in the future.
To maintain privacy your IP address will not be recorded by Tick Talk Ireland. Apart from initials, & county of origin, no further personal information is required.
Thank you for your participation!
** Update June 2010:
Tick Talk Ireland have submitted a new petition to the European Parliament petitions committee.
Go to our petition section on Facebook to see more!
**Update September 2009:
Thank you to all those who signed our petition:
The petition was submitted to the Minister of Health 2nd September 2009. I have also submitted to Ms Harney results of our survey – a summary of these results can be obtained at the following link. The reply from the Minister of Health of 10th September is also posted in the link below!
The survey is still open and we will continue to review answers as they come in (details below!)
*Try out our New Lyme Disease Survey in Ireland
(All replies are anonymous and no contact details are required)
To qualify you must be a Lyme sufferer who is:
* Living in Ireland – infected by Lyme here or abroad or
* Not living in Ireland – but infected within Irish Counties
Thank you for visiting us at Tick Talk Ireland!