Useful links & what we’ve been up to!
*For anyone new to the world of Lyme, download our newcomers guide at: https://ticktalkireland.wordpress.com/2013/08/01/help-for-newcomers/
*Suspect Lyme? See our post for more information…
*Chronic Lyme – truth or dare? Check out these links to make up your own mind! https://ticktalkireland.wordpress.com/lyme-links/chronic-lyme/
*IDSA guidelines authors are of the opinion that Lyme cannot persist & seronegativity is an unusal occurrence right? Not so! Check out this link for more! https://ticktalkireland.wordpress.com/2010/07/28/persistence-seronegativity/
*But won’t those patents really tell us what’s going on? Makes for interesting reading anyway! https://ticktalkireland.files.wordpress.com/2011/10/a-look-at-patents1.doc
*Lyme is just one big Myth! Let’s bust them once & for all..
*Check out our compendium (30 pages of studies, newspaper, radio & TV interviews) all related to Lyme in Ireland (current to Dec 2014): https://ticktalkireland.files.wordpress.com/2014/01/ireland-articles1.doc
*or our Lyme links section for more recent updates https://ticktalkireland.wordpress.com/lyme-links/
*So then, what treatments do you recommend. As we’re not doctors we can’t recommend any but we can give ya all the links ya need!! https://ticktalkireland.wordpress.com/lyme-links/lyme-treatment/
*Burrascano Treatment Guide (PDF)…
*Or for natural antibiotics check out our link at:
*For tips on herxes & flares why not check out:
*So what can you tell me about testing? There is no 100% accurate test for Lyme however the ‘gold standard’ is the 2 tier test which can have its problems. Alternative test info is available on our site at:
(or check out our newcomers guide -see first link at top of page)
*Our blog site has extensive information on the differences, strengths & weaknesses of various methods of testing suitable for scientists, students, medical staff as well as curious patients!
What has Tick Talk been up to?
Various articles written by Pauline Reid or Jenny O’Dea of Tick Talk Ireland http://www.ticktalkireland.org/articles.html
Over 2,500 copies of our new book ‘The Adventures of Luna & Dips’ was distributed among schools in Ireland together with a teacher’s pack. A free copy of the book & poster was sent to libraries in some parts of the country.
Order ‘The Adventures of Luna & Dips’ on Kindle (New Apr 2015)
Conference June 2012….
Irish Lyme Conf 2012: pic by Mary Smyth
Irish Lyme Disease Conference Dublin June 2012 http://www.ticktalkireland.org/conferencereview2012.html
We also did talks for various groups including IOSH, Lisheen Mines & Deer Hunting Groups..
Leaflets & Handouts….
Irish Lyme Leaflet
School Info Sheet
Download Symptoms Chart
Letter to the Medical Card Review Team June 2014
Letter of Concern to the HPSC, Minsiter of Health, EU CDC & UK PM https://ticktalkireland.files.wordpress.com/2012/11/letter-concern-web1.pdf
Letter to HPSC, IDSI & other health organisations https://ticktalkireland.files.wordpress.com/2012/11/idsi-et-al.pdf
Minutes of our Meeting with the HPSC (Health Protection & Surveillance Centre) https://ticktalkireland.files.wordpress.com/2013/02/hpsc-minutes.pdf
Petition to European Parliament & Minister of Health Ireland https://ticktalkireland.wordpress.com/lyme-links/survey-petition/
A links page has been set up to cover a whole multitude of subjects in alphabetical order, everything from testing to symptoms to lyme & ME, lyme & MS, rashes, herxing & more!
NB: the store is now closed however check out the link for tips on where to buy alternative supplies
This link contains many Irish related articles including news articles with Tick Talk members & volunteers! https://ticktalkireland.wordpress.com/lyme-links/irish-related-articles/
Lyme on radio https://ticktalkireland.wordpress.com/lyme-links/lyme-on-radio/
Tick Talk has been working closely with Lyme Research UK & Ireland team to help collate studies relevant to testing. Lead researcher of the team also presented her social studies survey looking at experiences of Lyme patients in UK & Ireland at our lyme conference 2012.
A copy of her talk is available on our conference disks (we have some left – available free by sending an SAE!)
Some links on studies/articles undertaken by the group available at:
We can provide limited amount of help & advice however none of us on the board are medically qualified & our team is very small. We hope a lot of the information & links provided will offer assistance & talking to other members on our groups below. (PS no doctors can be named in public to protect them as much as possible)! If you do need to contact us we can be contacted here at: http://www.ticktalkireland.org/contact.php.
Please Note: We are a very small team & as such cannot offer telephone support to patients.
Lyme & Tick Surveys (Ireland) http://www.ticktalkireland.org/surveys.html
2014 results avail at:
2012 results avail at:
2011 results avail at:
Tick Talk has gotten close & personal with a few ticks in Portumna Forest. We didn’t have to go far into the forest, there were numerous samples found in the picnic area, around the tables where people had been eating & around the bases of trees where children had been playing & even in the short grass in the area for picnic blankets – be wary out there!
Some pics of the ticks collected can be found at:
Pauline from Tick Talk speaks on TV just before our conference in 2012! http://vimeo.com/44034845
Pauline also appeared on TV3’s Morning Show however the link is no longer valid!
Talk by Tick Talk Ireland http://www.youtube.com/watch?v=216PqMYn99Y
Slides by Tick Talk Ireland http://www.youtube.com/watch?v=LayW4TQXLuc
Video to support Wordwide Protest http://www.youtube.com/watch?v=3J0rZezwY7g
Fundraiser for children’s book project http://www.youtube.com/watch?v=xLSQhAl7AIE
Facebook Group http://www.facebook.com/group.php?gid=44960753282
Facebook Fan Page https://www.facebook.com/pages/Tick-Talk-Ireland-Lyme-Disease/115731715179208
Facebook Herbal Group https://www.facebook.com/groups/263709223729311/
Twitter Feed https://twitter.com/ticktalkireland
Blog Site https://ticktalkireland.wordpress.com/
Main Site http://www.ticktalkireland.org/
(PS loads more guides, books, support group links available on our blog site – see right hand menu for more at: https://ticktalkireland.wordpress.com/)
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