Tick Talk Ireland “Encouraging awareness, prevention & treatment of Lyme Disease (Borreliosis) in Ireland.”
Tick Talk Ireland was set up in January 2009. Alarmed by the lack of knowledge & support in Ireland regarding this serious and often over-looked disease, the co-founders set up a facebook discussion & information page to help others dealing with tick-borne diseases. In the summer of 2009 a blog site was created with links to Tick Talk articles, Lyme groups in Europe & North America & tips from Lyme treating doctors on diagnosis and management of symptoms. Tick Talk Ireland aims to achieve the following objectives:
* Ensure that physicians are made aware of the need for early treatment to prevent a more serious & incurable state of infection.
* Encourage interested parties to undertake training of Lyme management (via the ILADS physician training program).
* Encourage government funding & university research on Lyme symptoms & the spread of Lyme in Ireland.
* Undertake projects and Lyme awareness events to inform the public of the threat of Lyme disease in Ireland.
* Disseminate information on Lyme prevention and treatment by distribution of leaflets, posters and postcards.
* Liaise with similar bodies and support groups in the UK, Europe and the United States with a view to sharing information and advancements in relation to Lyme Disease.
* Encourage ME (chronic fatigue syndrome) & MS (multiple sclerosis) patients to be tested for Lyme disease due to the similarity of symptoms in both conditions.
There are several ways to help support us:
1. If you’d like to help us with radio & newspaper interviews to discuss your experiences with Lyme disease feel free to contact us at http://www.ticktalkireland.org/contact.php
2. Looking for anyone willing to distribute leaflets in their local area including vets, school, clubs, sport centres, cubs/brownie groups, hospitals & libraries..
3. If anyone would be interested in organising an awareness event in their area we would like to hear from you. We can loan a copy of Under Our Skin (with presentation rights) to be shown in your area & we also have put together a presentation disk of Lyme in UK & Ireland.
4. Looking for folks to spread the word on our new tick study – if you see any ticks this summer remember to complete the survey at: https://www.surveymonkey.com/s/B3XTJL2
5. Looking for scientists/universities to support & fund much needed research into tick-borne diseases in Irealand.
If you’re able to help with any of the above feel free to contact us for more details – take care & remember, A Tick in Time Saves Lyme
Thank you for your support!
Important Note: This website is intended for information purposes only and should not be substituted for medical advice by a practicing physician.
Tick Talk Ireland – “Encouraging awareness, prevention & treatment of Lyme Disease (Borreliosis) in Ireland.”
Facebook Group / Facebook Fan Page / Main Site / Blog Site / Twitter Feed
Both Jenny O’Dea & Janet Fitzgerald have done wonders in setting up this group, is there anyway of being a member?
Jacqui
Is it by ticking ‘ keep me informed’ button?
Thank you for your lovely comments Jacqui, there’s a couple of ways to follow us on Tick Talk. Facebook members can follow us on our group page at: http://www.facebook.com/groups/44960753282/
or on twitter at: https://twitter.com/#!/ticktalkireland
To follow updates on our blog site go to ‘feed’ section at the top right & there is a section to allow you to follow updates using yahoo or google among others. For instance on ‘my yahoo’ page I have newsfeeds from various groups & any updates from those groups will automatically be added to my page. Hope that’s a help!
Many thanks again & take care, Jenny
Been trying to leave a comment on tick talk Ireland, but doesn’t seem to be working. Just in case you are not aware of it.
Hi Anne, thanks for letting me know. Which site are ya having problems with, the main website or facebook page? Do you have an error message, I can mention this to our webmaster to look into it for us. An alternative method for contact is info AT ticktalkireland.org (replace AT with @ when mailing, this is just to prevent spamming). Many thanks for your help. All the best, Jenny
Hello Anne, I’ve checked with our webmaster. It seems that the contact form has a security code which has to be entered all in small letters (ie not caps) to go through. He has added a wee note on the site to mention this but if the problem still continues do let us know 🙂
With very best wishes, Tick Talk Ireland
Hi, I am pleased and grateful to have found your site. Although I may not have Lyme, I have had a strange combination of symptoms over the years which are being treated as arthritic (NSAID’s but not much help and bad side-effects) but I believe my symptoms are chronic-infection linked (as they disappeared completely when on antibiotics, twice, as I also have bronchiectasis). I have tried oregano oil and a number of herbs and supplements as well as anti-inflammatory diets but without success. Having read ‘The Road Back’ etc re- successful treatment of RA and other auto-immune disorders with antibiotics in the US, and with your ground-breaking work here on Lyme disease, I wondered if you might be able to advise me, or to direct me to any groups in Ireland (north or south) that are trying to create more awareness and availability of these kinds of approaches? Or indeed any other suggestions,
Many Thanks,
Roberta, Belfast, NI
Hello Roberta, many thanks for your message. I don’t know directly of other groups other than the Irish ME Trust who have yearly therapy weeks for ME/CFS patients including yoga, painting, reiki, massage among others & also hold alternative treatment sessions across Ireland. In respect of Lyme Tick Talk Ireland run a herbal Lyme group on facebook – a lot of the herbs tackle viruses, bacteria, parasites & multiple infections & also tackle heavy metals, immune support & so on. If interested the link is: https://www.facebook.com/groups/263709223729311/ (if link doesn’t work look for Lyme herbals – Buhner, Cowden, Jernigan & more!)
Thanks so much 🙂
Hi and thanks so much for your reply and informative links. I have caught up with your facebook and really feel supported by the information and community you are building up here. I have also availed of your link to Dr Schwarzbach and sent an email query which I copied to your website message facility, as I would be very glad of any thoughts you might have on my situation and indeed on anything I could contribute to the campaign. Thanks again and very best wishes, Roberta